Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Im glad you have found our site to help get you and your friend thru the rough weeks ahead. Focus on what is within your control... her intake. This is the most important part of the whole process. Every single day she needs to take in at least 2500 calories and 48-64 oz of water. This sounds like alot but its the bare minimums, if she can take in more that will only help get her thru it easier. Ask the doc for an open prescription to get extra hydration from the chemo lab a few times a week. This will help her to feel a little better when it becomes difficult for her to eat and drink.
Start a list of friends and relatives who have offered their assistance. The time will come when she needs help. Nobody gets thru this alone.
On our forum and the main OCF pages, read and educate yourself. Its important to understand as much as you can about this horrible disease, treatments and side effects so you can be a good patient advocate for your friend. She is very lucky to have you! Dont forget to be kind to yourself too. Its not easy for anyone involved, even caregivers sometimes need anxiety meds to help get them past the worst of it.
Stick with us and we will help. We are here for you both.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |