Well, he's 3 months out and this morning is his PET scan. I'm just a bundle of nerves. They have us set up with his chem. onc. next Monday to go over the results. Do we really have to wait a whole week for results?!! I think that will be the longest week of my life.
Things are going ok. He's was doing very well with eating, got his PEG out last week. Then, I swear his mouth got even drier and his taste buds just stopped working again. He also developed a sore spot on his left palate that gets irritated depending on what he eats. I looked in there and it doesn't look like much but he said it can really hurt. I'm a bit worried about that spot. It doesn't seem like he should have a new sore spot at 3 months out. So, finding foods he wants to eat has been a real challenge. Sometimes I feel like I'm letting him down when I can't come up with something that will taste just ok to him. This recovery is really, really hard and I have the utmost respect and empathy for all of you.
Please send out good thoughts, prayers, vibes our way today. Take care, all of you.
Carol