OP Supporting Member (50+ posts) Joined: Jan 2013 Posts: 65 | Charles is scheduled for surgery approximately 10/23/14. He has been diagnosed with SCC BOT and the cancer has gone into his larynx with mets to lymph nodes. He is scheduled for tongue resection, laryngectomy, forearm radial free flap and leg skin graft.
I have noticed that quite a few folks on this forum have been treated successfully with chemotherapy and targeted therapies but not surgery. We have a provision in our health insurance that will pay for a second opinion. Charles surgeon only uses chemotherapy for palliative care, he does not think it is effective as a curative.
We live in western North Carolina and go to the CCC at Wake Forest Baptist Med Center, rated no. 1 in our state. But would be willing to fly to MD Anderson for a second opinion to avoid surgery. Or any other recommended CCC.
I am sure you will understand where our heads are at. Any thoughts?
Wife/caregiver to Charles ENT diagosed SCC Rt Tonsil Stage IV, MET 6 lymph nodes in neck 1/2001 Tonsillectomy, RND and six weeks RADS 2/2001 ENT diagnosis from CT scan, SCC in Rt tongue 2/13 25% of tongue removed 2/13 (clear margins) SCC BOT with mets to 2 level 2 nodes and Lt. Delphian node 8/2014 Surgical biopsy shows cancer in larynx 9/2014 Laryngectomy, resection & rebuilt tongue w/ pectoral muscle, selective neck dissection 11/2014 Recurrences '16 HPV Neg No EGFR Mutations Detected
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