 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | At 3 months out, I would be concerned with infection. Please check your father's temp from time to time to rule that out. With platinum based chemo, it's not uncommon for the body temp to drop during treatment so what was a mild temp before may be more severe.
Also, excess production of stomach acid is something that can happen with radiation and with chemo. If that's what is going on, better to nip it in the bud.
I'm a bit concerned you are getting shuffled around so soon after treatment. Your father's oncology team should be insisting on seeing him for at least the first couple of years if not the first five. A GP won't have an idea where to go on many of the side effects. You should also be able to get in post haste with any issues at this point in recovery.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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