Hi Molly, yes my Kris and your Sister Katie are indeed a rare pair. There are not many who have had to have both these surgeries
There is 1 man we know of who our ENT told us about , who had his surgery 22 years ago. This is survivable and doable.
Tell Katie we are thinking of her and will be here to help and give advice as you need.
Please keep us posted.
Tammy

Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!