 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | At first I felt embarrassed that I had cancer and didn't want to tell ANYONE. Why did I feel embarrassed? Because I had never really been sick a day in my life and I was always preaching to my employees to stop smoking and then I get told I have a 60% chance of living 5 more years from a cancer caused by smoking. That was 8 years ago and that was the only known cause of SSC.
Took a week or so but I got over it and I told all the people I thought needed to know. I told my employees and my wife's employees and I wrote a letter to all my clients. I also told a very few friends and I also told my grown kids which was a BIG MISTAKE unless you don't mind finding out if they are greedy or not, lol
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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