Welcome to OCF! Im sorry you have had a need for our forum but Im glad you found us. We will help you as much as we can with info and support.
Your cancer is a rare form of what most of us have had (SCC- squamous cell carcinoma). Im unsure if this type is caused by
HPV. But the location of it being on the bottom of your tongue makes me think its
HPV-. As you found out doctors can not tell visually weather a tumor is cancerous or not. Only the biopsy is what tells you what it is.
I suggest going to a major comprehensive cancer center (CCC) for treatment. This is especially important when dealing with a rare cancer. Below is a list of CCC's. They are the countries top hospitals to treat cancer. The CCC facilities all use a team based approach where the specialists get together so everyone is on the same page. If you cant get to a CCC, there is also a list of the top US hospitals. Look for a teaching hospital or university hospital. Find the best medical care you can and then also get another opinion. Remember, once a surgeon cuts it cant be put back.
CCC list US News Best Hospitals ListBest wishes!
