I think the biggest problem for me is that nothing sounds good and I can't eat much yet because of the limited tongue motility. The easiest foods to eat are fatty foods and the grease just turns my stomach. I can't even talk about eating an egg again. The things that sound good, I can't eat. I desperately want a sandwich but I can't coordinate the chewing of it. I have always had a problem with shakes and smoothies because of the thickness. I do have a PEG tube but the smell nauseates me. I want it out so I don't have to deal with the smell anymore. To that end, I want to eat on my own but it hasn't been easy. I've basically stopped using it. I appreciate any advice and information.


Lorraine

MRI DX of cancer on left lateral tongue 10/13
Semi-Glossectomy of painful lesion
(approx 1/3 of left half) 11/13
Biopsy DX of SCC (never told stage) 12/13
2x Cisplatin
35x XRT ended 4/14
Clear MRI 5/14