OP "OCF across the pond" Supporting Member (50+ posts) Joined: Jun 2014 Posts: 56 | As you know, I've had severe nerve pain, burning, crawling, prickling - in the side of the neck dissection: ear, neck and shoulder.
It's been horrible and wasn't helped by either Morphine or Tramadol.
Long story short - I started Pregabalin 3 days ago, and my god, it helped almost immediately! It stops the burning soon after taking it, and the relief lasts about 5 hours!
I'm on quite a low, introductory dose, which is to increase next week.
I can honestly say, this drug has been such an incredible relief! It's nice to have some good news, isn't it!
Mar 99 white patch tongue Dec 11 white patch changed shape. biopsy neg Sep 13 white patch ulcerated. Biopsy Nov 13 diag Tongue SCC T2N2BM0 poorly Differ. Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft Feb 14 PEG tube Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.
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