OP  "OCF across the pond" Supporting Member (50+ posts)
Joined: Jun 2014 Posts: 56 | Thanks Christine and Paul
Paul - I've been trying to read up on it too. The NICE Guidelines/Care Pathway (over here in England) do recommend it, but when platinum therapy isn't suitable. Seems like my team felt I didn't need chemotherapy. I am in clinic on Wednesday and I'm going to ask them about it, EGFR and KRAS. I don't know if they've tested for it, or if they will. I just keep seeing an increase in survival of around the 20% mark. From where I'm sitting, there's a MASSIVE difference between 56% and 81%.
Mar 99 white patch tongue
Dec 11 white patch changed shape. biopsy neg
Sep 13 white patch ulcerated. Biopsy
Nov 13 diag Tongue SCC T2N2BM0 poorly Differ.
Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft
Feb 14 PEG tube
Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder
Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.
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