Thanks David!

In the second part of your list was Univ of WA, which I know to be a fabulous care facility. We're part of an HMO- Group Health of WA (GHC). It's pretty comprehensive, but not real helpful when you want to go outside of their network.

My doctor is a great ENT, and very helpful in answering questions/having things reviewed by the GHC oncology docs, but I feel like I have a million questions and lost about why all this keeps re-occurring & how I can combat it. There has to be something I can do to stop losing my tongue. Not to mention the anxiety & cycle of living around surgeries for the past few years.

Part of me feels silly...my surgeries are so small compared to what so many of you are going through. And, only one diagnosis, with no chemo/rad. I don't FEEL like a survivor when so many have gone through so much more.


'09 tongue/sensitivity acid/spice -R side biopsy shave neg
'10dec painful white patch-R side tongue
'11 3 biopsies, Stage1 SSCA-R side tongue, no further treatment by ENT
'12 biopsy-R side tongue, no carcinoma-PET normal
'13 2 biopsies-R side tongue, mild squamous dysplasia-severe swelling/virus
'14jun11 R side tongue biopsy-low grade dysplasia-tissue growth out of wound-tenderness/sensitivity
'14oct-ENT refer to CCC-scheduled for 28oct14