OP  "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | Yes, finished yesterday, wrote a post, then lost it. Never mind - I was jubilant about finishing in spite of feeling a bit sore, washed out and blah.
Side effects? I've lost one kg since treatment started, lost most sense of taste, have a sensitive, swollen mouth, little energy and rough, dry red skin with some broken down patches. I can see only one ulcer but the nurse said the very red skin in the scar near my ear was about to break down so I have a dressing which looks like a ruff around my neck.
I'm sure I've left out some effects. Last night I had to pace the floor for a while because of the pain in my ear. It dispelled quite quickly and I went back to sleep until 8 am. Late for me! Most of the time Oxycontin keeps pain at bay.
I'm giving these details because I always want to know how the side effects work out in others so hope my accounts might add to the mix.
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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