My daughter had SSC of the tongue and had surgery in February to remove 1/4 of tongue and partial neck dissection, no RT or chemo. Tow months post op and she had started to have significant swelling in her tongue and a sense of swelling inside her neck. After reading further, this sounds like lymphedema if he tongue and internally int he neck. Has anyone experienced this. She is going back to see her surgeon in a couple of days, but she is afraid he will not listen to her, she is desperate to get help with this. Thanks so much for your input.