Hi, not sure if this is in the right forum, since it's not really an "issue" but I guess the post can be moved.
Anyway...I've had my first PET scan after TORS surgery 7/2013 and end of radiation 10/2013 and it showed metabolic activity at the base of tongue. The report says it can either be a lesion or post surgical changes. It's hard to be positive at the moment since i usually see all clears and NED from others after their first scans. I know no one has an answer, but anyone know what's next, or has anyone experienced the same report and it was not a reoccurrence? My ENT is out of town, and I will see him next week.
Thanks....
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
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