Hi Kimberly - Welcome to the family. It's a big one with lots of very supportive brothers and sisters to help you and your loved one on this journey. We have all been in your shoes and stood where you stand, so we know what you are going through. Even being an RN, I'm sure you are still terrified right now. Saying that it's normal for you to feel this way I'm sure doesn't help in the least.

It's really your lack of knowledge that has you the most terrified. That's where we come in. The personal side, the information about other people who share your same diagnosis you will find here on the forum. The technical or medical knowledge side you will learn from reading the pages on the OCF website. It's a steep learning curve for new members, but it will get you out of that terrified phase better than anything else. Ending the terrified phase is what will allow you to start sleeping again. So, get busy reading. The next few weeks will be busy for you and your husband. You have a lot to learn in a short period of time.

Last piece of advice for today, try to get your husband to join the forum also. That person to person contact will help him along his journey just as much as it will help you.

take care, write when you need information or just need to talk.

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good