I will have a post-op next week, and discuss options then. If I can talk, LOL. That is why I am reading here now. I expect the docs will be aggressive. He already mentioned going back to the tumor board with my case. Seeing as my nodes are already out, I an guessing radiation will be pushed.

I was scared to come and read, because this is a very thorough site, but I know I need to research. And cry. And all that.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery