welcome 12Kels I hope that you do well in your fight against this terrible affliction, just know that your questions, concerns, and frustrations can all be address in the one of the forums that are at your disposal here amongst your piers that share your diagnosis.

Last edited by sunderwood1111; 10-07-2013 11:39 AM. Reason: inadvertantly highjacked with my own ?
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.