Just what Christine said, I my pain regimen was not nearly what it should have been. I emailed my team and explained to them. And now I can deal with every thing so much better. It took the big guns to do it but I am not worrying about that now.(Fentnyl patches).If I have to wean off then that means that I must be doing much better! Shawn u.

. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.