 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | This was 7 years ago and at that time no study had been done comparing the 2 but Moffitt's belief was they were equal but that Cisplatin was their number 1 choice (the Gold Standard) unless you had pre existing hearing conditions or until you heard the ringing. This was also before it was known I was HPV+ because not only did I have to go thru the entire Tx but I had to research the HPV connection, find Dr Maura Gillison at Johns Hopkins, call her and get her to agree to test my slides, get Moffitt to send them to her and wait a month for the results. Even though I am still convinced I was waaayyy better off choosing Moffitt for my treatment I still had issues with them.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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