OP  Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Thanks for the suggestions, Ingrid, PaulB and Christine.
Today the Home Care nurse suggested that the sensitivity may be the result of the effect of radiation on the lining of the esophagus. She recommended using thickening powder with whatever that John can drink. We will give it a try.
I worry about aspiration too, so will for sure press for a swallowing assessment when we see the doctor next week.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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