 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Kim,
I forgot to mention that even though your doctor was wrong telling your mother and not you, it is understandable since your mother called the doctor to ask about pain pills. Technically, the doctor broke our new laws (HIPA) by discussing your case with anyone other than who you specifically indicated in writing on the HIPA forms. If you put her on the forms as being okay to discuss your medical information, the doctor only showed poor judgement. Did you mother already know this doctor?
Anyway, I hope your day is all you want it to be!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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