It's all a part of this disease. Past 5 yrs and I'm alive thanks to 6 cans of isource a day. Mine goes in via tube but it works. Just ignore the bad tase and go for whatever uou can.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here