I have recently had my third throat dilatation, and when I saw my ENT they ave decided not to do any more as it is too dangerous plus it only worked for a few days this time. I have to say I was very upset at being told that this is all there is they can do and I will just have to live with it (he didnt say it in those exact words). I am supposed to be taking nil by mouth and existing on my peg feeds, as I keep getting pneumonia from food and fluids going into my lungs. I am feeling really down right now, but I guess like everyone else I will get used to it. Sorry for venting but I know you dont mind me doing it here. And, thanks to everyone who replied to my previous post.

Margie


SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.