"OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hi Alan, I did not have radiation so will leave it to others to comment on your sisters issues with a swollen tongue. I can however comment on your question regarding no one being able to give an estimate of how long this will last. This frustrated me also and I was often given the �how long is a piece of string� whenever I posed questions like yours. Simple answer is everyone is different and I doubt if you will find anyone that can give you a timeline. I also had a little swelling of the tongue/flap from surgery that did NOT prevent me from eating my pureed food earlier on. I did have a few de-bulking surgery�s for this mainly on the flap. Is there someone on her team that you can talk to about her depression over this? She may need a little help with this. Best wishes for her recovery and hope that it is a very short piece of string. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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