Hi Everyone, As you guys are aware Ive been having problems with osteonecrosis, as well as problems with lumps on my tongue (biopsied and negative).I can't get ANY answers from the arrogant surgeons Ive been "allocated" at the Royal Melb Hospital. I didnt even get to see the one who did the actual biopsies after the small general I had!
I'm wondering if it is scar tissue on my tongue? I was told they are oral thrush...but does oral thrush cause large solid white painful lumps that dont move, and dont go away? I also still have osteonecrosis (there is still dead bone on my jaw). I had 30 treatments of HBOn and the small holes closed up, so the planned defribilation didnt go ahead. The biospies left stitches in my tongue, and it's left large painful lumps. It has made the pain worse and I am beside myself with the pain from my jaw and tongue.
None of the surgeons at the Royal Melb Hospital, or the Drs at their pain clinic, or my own GP, seem to have any answers, or know what to do with me. I have a great fear of the cancer returning and these "specialists" not picking it up. I have no idea what the lumps on my tongue are.
My usual GP is away, and the Dr (at the same clinic) seems to think the Surgeons should have operated on me (he also asked if I'd tried Buddist chanting, hypnotherapy and laser accupuncture, so you can imagine the kind of GP he is)
I would like to know if anyone in Melbourne Australia could suggest a new GP for me? I probably need a new GP and a new Maxillo Facial Surgeon, and perhaps a Dental Surgeon?
I am scared I will lose my remaining teeth and my jaw wont be strong enough to do anything with.
Please feel free to send me suggestions of Drs in the East of Melbourne. I live in Mt Evelyn, so as I've been needing to attend my Dr weekly for pain management, I would appreciate a Dr nearby.
I'm definitely needing a second opinion. I'm on MAJOR pain meds, and I'm thinking at this rate, I'll be on them forever.
I know many of you have worse problems than me...and that I'm really one of the lucky ones, but I am really scared and frustrated at the moment. I am sick of being handballed around and sitting here in pain, with no idea what I am supposed to do next.
Thanks in advance for any ideas the Aussie on here may have for a new Dr for me....and if anyone thinks what Im experiencing is normal after the treatment I had in 2007 is normal, please let me know (and I'll relax).
Best Wishes to you all Lyn
PS Im in Mt Evelyn (Melbourne)...so Eastern Suburbs would be awesome, having said that, I will happily travel to a good understanding GP.

Tongue Cancer SCC Removal of 2/3 of right side tongue, neck disection-34 lymph nodes removed. flap for new tongue made from left wrist in 2007. Now (mid 2011) speech has been back to normal since early 2009, and Im back working as a singer. So far so good!
2016... Still cancer free! Yay.