That is awesome to know, congrats to you! Yep, just as all the medical drs., know one has ever heard of this long term effect. Ron is actually entering a rehabilitation center today to get off all the opiates because the person we sought help for (phychological), happens to be a long time friend and RN, immediately told us that he needs to get off all that stuff in order to heal. So, as afraid as he is to do this, we are checking him into a private center. The reality is that ON all those drugs he is still having the pain, so he may as well try something different and get off them now so we can really deal with his mind and physical pain issues. We are just out of options with the doctors. May have to shift gears and seek out someone who examines the mucositis issues and if there may be further damage to his tissues caused by the treatments. Hoping for a positive change. Thanks for the tip of the signature. I will update this...!


3/12 TX-Taxotere & Erbutux(6 doses)& 35 IMRT radiations. Taxotere/Erbutux were fairly new combo to treat SCC base of tongue,(possible cause Virus). Not a smoker or drinker. PEG in 6 weeks post TX for malnutrition. No eating still at 17 wks post due to pain and mucositis on tongue & tumor site.