So apparently I now have to deal with this wonderful thing called 'lymphedema.' I've heard about it, read about it, seen you all talk about it on here. But it becomes all too ominous and real when the doc says that it's now my problem as well. Anyone have any experience with treatment? I'm frustrated because I'm sore and swollen as all get out, stiff, neck is tender to the touch, have bouts of pain on the floor of my mouth and in my ear. I'm not sleeping well and come to find out the cancer center I've had all my treatment out of here in AZ is booked until October in their lymphedema center. I called my doctor today, still waiting to hear back. Just frustrated and sick of being uncomfortable.

MissBazinet


Female, 37 yrs old,Non-Smoker/Social Drinker, HPV-
T3 N1 M0 SCC Dx 11-10-11
11-23-11 Left Hemiglossectomy
11-30-11 Modified Radical Neck Dissection
01-25-12 Removed another spot on BOT, skin graft (left thigh)
38 RADS Tx Finished April 13, 2012
Fall 2014 - HBOT due to wisdom teeth extraction post radiation