Just found this post as I was just wondering what to say when I go back to work. I know people are going to ask because I used to see most of the same customers weekly and of course, coworkers are always asking how I'm doing. I remember when I was little my grandfather had non hodgkins lymphoma and always said he was in "remission." I first wondered if that term would even apply as my "tumor" and lymphs were removed through surgery and we don't REALLY know what and how much of the radiation killed. I find myself saying "I had cancer" and always wonder if that sounds right...this was the first time I had heard the term NED. Which I don't mind. It is frustrating that people automatically assume you're "cured." I also feel like some (including those closest to me) just expect me to be bouncing around and feeling awesome and "getting back to normal." Like it's SOOOOOO freaking easy. I want to scream "You have NO IDEA what I've been through! My life will never be the same!" You can't just "go back to normal." Ok...sorry...end rant.


Totally didn't mean to Hi-jack the caregiver/co-survivor forum. I found this post through a google search and didn't realize what forum it was in. Sorry!


MissB