Hi Robin

I had a CO2 Laser glossectomy last October 2011 and more recently a revision to fix significant adhesions that anchored the left side of my tongue to the floor of my mouth. I have numbness and nerve pain to the left lateral and tip of my tongue. Which I suspect is what you are describing as well.

My second surgery, the revision freed up the anchoring rather well, my tongue tip still deviates to the left but not as much as before. When you say "they just pulled one side of my tongue over and attached it to the other side." I wonder if you too developed adhesions that have anchored your tongue? Perhaps a revision may help to modify your tip? Have you discussed options with your surgeon?

How severe is your nerve sensation? I have nerve pain and it was very severe after my first surgery. I have since learned that nerve pain can take anywhere from 6-24 months to regenerate if at all.

I take T3's and gabapentin for the pain. My pain ranges anywhere from a 2/10 to a 8/10 still. If you are bothered by the sensation and if it is painful, you should seek counsel from the Pain Clinic at your local Cancer Centre. I am asking for a referral to the Pain Cinic at my Cancer Centre (on Monday) and hoping to get in by weeks end. The worst part of pain and medication is how tired I always am. Getting up at 04:30 for work doesnt help. LOL

PS I too bite my tongue too frequently!! I went to my dentist and had a few sharp bits of my teeth filed down to minimize the risk of injury. I have actually woken up having bitten myself.

Hope that helps. Best Wishes and I hope your sensation issues are faster to fix than mine.

PS Do you see a speech therapist? They can offer you exercises to help with tip positioning.