Hi Kim,
First of all let me say we are sorry you have to be here, but it is the perfect place to be with what you're going through. There is a tremendous amount of support here, don't hesitate to ask questions, vent, cry or scream....we'll be here to listen. We have all been there.
Where on your boyfriend's tongue is te cancer? I guess the ENT did another biopsy to confirm his belief? Has he or is he going to have a PET scan. I have other questions, but so will everyone else so I'll end with those.
Stay in touch. The journey is long and tough but we have all made it through and you guys will too. How old is your boyfriend? Have they checked to see if he is HPV+?
Blessings,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14