Welcome Notanurse:
You have come to the right place to get information from others who have gone through what your husband is going through, me being one of them. Some do better than others, but the secret is to keep the formulas/nutrition via the PEG, and try to swallow some things if not but just water to keep his swallowing capability. It's a fight that can be won, and he can do it. Others will join in eventually with all sort of information and ideas for him to try. Things will improve as time goes by. We are here for you. There is a world of experience on this Forum and you will be so glad to be part of it - Welcome!
julieann