 "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | The only input I have is that Kevin felt so good the first 3 weeks we thought it was gonna be a piece of cake. NOT....but everyone is different like everyone said. Good that you are eating. Eat a ton now while you can.
As far as the PEG, Kevin had one but barely used it because he hated it. It hurt like crazy to eat, or I should say drink, mostly, but he would down Lortab and use the magic mouthwash and chug stuff. Mostly Ensure for a little while. He ate scrambled eggs throughout most of tx, for as long as he could stand it. He really doesn't like eggs much anymore!
Good luck. Keep in touch.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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