Hi Diane,
You are right, it is his decision. There is a forum for caregivers and I would encourage you to use it as you proceed. There are others who have been down the same road and I'm sure any wisdom they have they will share. We are here for you, please know that this is a safe place to share your fears and concerns.
Blessings,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14