Brendan,
The only thing I can say about it as that sometimes, if you can hold on, and you do get some remission, it may be you would be eligible for another treatment. It does not seem to me that your doctors have told you anything like that. I don't know for certain. Neither do doctors.
You should definitely do what Christine says about seeking out remedies for your pains, rashes, etc. Surely your medical personel can help with this.
I also think what you do or do not do is a personal decision.
Have they told you no radiation or surgery?
Sorry you are going through this.
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
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