Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! There is much info and support not just here on the forum but also on the main pages as well. A well informed patient and caregiver are benefits as they are then able to use that knowledge and be their own advocates. Oral cancer is different than other cancers to get thru. There are many unique challenges oral cancer patients face. Some patients with Stage I will struggle and some with Stage IV will sail right thru. Having a positive attitude helps the patient to feel better about the situation.
If transportation is a problem, try calling the American Cancer Society and ask for help with taking your sister to her treatments. Even if they can find a driver to take her once a week, that would be helpful. If there are friends or other relatives who offer to help, maybe they would take a day to drive. This will help make it less of a burden on your family.
Please encourage your sister to also join OCF so she is able to learn about her illness.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |