Seems like Andy is in uncharted waters...not typical to have such a distant metastasis. Been in touch with Brian and he confirms that this is unusual.
Andy had his pet scan Tuesday and we meet with his oncologist next week to find out if the mets are responding to new chemo regimen. Waiting is so hard as you all know.
The saying "expect the best, but prepare for the worst" is a hard one to balance.
just gotta get through the weekend. Thank goodness for glorious weather, some live music, and Alabama football. Also, the movie "50/50" is coming out tomorrow...anyone planning to see it?
Appreciate any words of wisdom from those of you who have dealt with recurrence.
Sincerely, robinleigh


Robin, caregiver to husband, Andy (57 yo non-smoker)
1/2011 dx scc stage 4 -primary- tonsil/bot
2/2011 surgery/rnd/ imrt rad/ 3 cycles cisplatin
6/2011 recurrence - mets to bone
7/2011 tx carbo/erbitux/5 FU- pet showed disease progression
11/2011- present clinical trial