Hi, I have had two bouts of chemo and radiation which left me with absolutely no saliva but also changed everything in my mouth. The problem is not just dry mouth and the inability to eat most foods but also the changes to my tongue and every part of the interior of my mouth. The condition of my mouth torments me every second of every day. The very nature of the cells seems to be altered. Everything I eat is absolutely awful; my taste is completely destroyed. People are completely unable to understand what it's like and I am utterly unable to describe how it feels. I use the Biotene products extensively and they help but not nearly enough.
I'd like to be in touch with anyone who has anything like this problem. My doctors have nothing to help me with this issue.