OP  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Christine, See that's the thing, usually BOT tumors are associated with HPV which brings a higher success rate but they are typically painless and very small and tend to only be discovered by a swollen node or 2. Here we have a rather large (quarter size) painful BOT tumor with no apparent nodal involvement in a person who otherwise fits the HPV profile. To further peak my curiosity Dr P, who previously told us the bio would only take a hour, raised his estimate the day before the procedure to 2 1/2 hours. Couple that with Dr P's comment about "maybe curable" and I am anxious to talk to Dr P. Brian am I missing something?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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