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| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Last night was that "super full moon" and sure enough, my G tube balloon suddenly deflated and out plopped the tube. It's 9pm on a Saturday night, with interventional radiology closed until Monday morning at my CCC where I have the first appointment to get the feeding tube replaced. So I grit my teeth and pop it back in place, hastening to secure it with a wide bandage and criss crossed surgical skin tape. Gingerly test it out with a syringe and I'm back in business. Whew.
Technical note: I use PEG in the subject line since almost every OCF member's feeding tube is a PEG. My tube is exactly the same as a PEG except in the way it is inserted and what doctors will change it. 4 gastro docs simply refuse and say stick with IR. Very frustrating due to CCC paper bureaucracy and parking etc. Local gastro doc offices are great but I can't use them.
Bottom line: if your PEG plops out: pop it back in and then get an emergency appointment asap. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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