I'm one year out and still find eating a chore and when I eat it's a 2yr old sized portion, no joke, my 2yr old actually eats more than me! I still supplement twice daily via peg since it takes me so long to eat and the drs think i'm way too skinny and need to fatten up.

My taste buds are getting a little better, I can taste most things but a little altered. My tongue will still burn quite a bit on random things that aren't even spicy or acidic.

I can't drink without adding some thickener to my drinks because I aspirate on thin liquids.

I say with time, he will get better, hang in there!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk