Thankyou Christine, I see my surgeon on Monday so I guess I will be asking for a pain management plan through him or my GP. I am on tramadol but I cant take the pain of this Trismus and if stretching is the only way I will need something strong to get through it. Even when I stop stretching I have a dull pain in my jaw and shooting pain that goes to my ear. It is bad.

Did you gain range of mouth opening back at all? How long did it take if you did?

Thankyou again for answering my post as their doesnt seem to be much knowledge anywhere on it. Even the hospital physio was no wealth of knowledge despite being very experienced.
Kindest regards
Tony

lyph node positive 10/08
Parotodectomy 4/09
Rad six wks 65 grey
Pet scan clear 03/10 no primary
Pet 01/10 base tonge primary
CT 3.5 Tumor 01/2010
radical tongue reconstruction
with forearm flap 2/10
severe Trismus 06/10