Klo
While the party line is 3,000 calories a day, my CCC RO noted that the bulk of his patients did okay on 2,000 which is about all I could manage during TX. It's not optimal, and the more calories the better, but since Alex is unlikely to change, I thought you might like to know that it's not the end of the world if he doesn't make the 3K a day.
Since he does have a PEG, don't be too dismissive of mixing in a little beer, although I found the carbonation troublesome after a while so I just put wine down my PEG tube. It's a combo of both calories and pain relief. Check with your doctors, but mine at the CCC had no problem as long as I did not drink any alcohol but just put it down the PEG.
Charm
Last edited by Charm2017; 06-18-2010 09:27 AM. Reason: typos