OP "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Charm & Everyone Else,
I owe it to this forum to be persistent and to seek multiple opinions. The experiences shared by others and advise given here is priceless. Although I've had more than one doctor tell me that I ask too many questions, including two of the surgeons that wanted to do major surgery on my tongue. I now have a personal rule that no surgeon who feels I ask too many questions will ever operate on my tongue while I'm under general anesthesia - after all, he or she certainly would be in the position to limit the number of questions I could "ask" in the future!
I am also aware that everyone is different in their response to treatment. My path on this "cancer journey" has taken a few unexpected turns and my reaction to RT has been more severe than most. I am thrilled with the recommendation of the doctor at Johns Hopkins, but at the same time I'm being cautiously optimistic that this will "cure" me once and for all.
Thanks for being there - I'll let you know how the surgery goes!
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
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