Hello my name is Netsy . First time poster ,lurker since August 09 when my Dad was dx with SCC of the Buccal mucosa. Stg 3... T2NIMO extracapsular spread. My sister and I are primary caregivers to our dad since our mom died of breast cancer in '02. Don't know where to begin sobbing as I type. I HATE this incidious disease. Dad 67yo had 8 hr surgery in 9/09 to remove cancer with reconstruction using forearm-flap. BTW non smoker non drinker. This followed by 7 wks rad 6000rads brutal regimen. He was such a trooper so proud of him and love him so much. Follwoing completion of rad in Jan... 1.5 months ago started with head and neck pain now has other symptoms pupils not same size droppy eyelid tongue swollen on one side neuralgia- like pain. MRI showed possibility of perineural invasion. PET tomorrow. He is scared and depressed. Has anyone traveled down this road and what can be done is it more pallative at this point? HELP!


Caregiver to Dad. 8/09 Stg 3 SCC of buccal mucosa.
T2N1M0 extracap spread
Surgery/RX complete 12/09
Reoccurrence 4/10 Stage 4 Mets to bilateral nodes & base of skull
40 rx & 2 rounds cisplatin
Hospice 7/29/10 .....died holding my hand 8/4/10
No smoke/No smokeless tobacco