So following neck dissection in Feb of this year, recovery has been slow and hard. Speech and food issues primarily, total loss of interest in food and the inability to have external healthcare folk acknowledge recovery issues has been very frustrating. As of last week the right side of face (same side of all treatment/issues) more or less "fell". Local docs thinking perhaps bells palsy but with history we visited her specialist. I believe in the few days following this latest issue she appeared lethargic and withdrawn. Pet scan scheduled now for Friday, 9th. I've been reading about perineural spread and bells palsy types of symptoms. Naturally this could be anything but in always wanting to be prepared for the worst (and hoping for the best) fingers are crossed! In the years since starting this journey its been comforting to have a location such as this, even with my extremely limited postings and hiding in the wings! Just to be able to read and be aware that so many are going through the exact same issues, frustrations and anxiety-ridden things is a great comfort.