Hi I was dianosed with SSC in July this year. I was a very healthy 58 year old guy. Quite active, I had 40 days of Radiation and 8 weeks of chemo, cimpactin and eubitrx. It was pretty tough, I was on lots of pain meds for about 8 weeks, patch plus morphine, It has been 9 weeks since YX and I am just OK. I still use the PEG for 20% or so of my cals. I have a very hard time drinking thin liquids like water. I drink alot od ensure. I did lose about 35 pounds.

By bigest trouble is fatigue. I am often so tired I can hardly move. It is quite frustrating and depressing.
I did start anit depresentants almost 2 weeks ago.

so that is me