Cheryl:
Welcome to OCF. Your friend is very lucky to have you there for her. I will try to answer some of your questions.

Staging is written out on the main pages of OCF. There is a search field that is very good there and will answer many of yoru questions. A biopsy is the only way to tell if its really cancer. I was a little confused by your posts as to if a biopsy was done.

Second opinions are something most cancer patients should opt for. Some even go for 3rd's, one member got 5. This would be especially important if the current ENT openly admits not much experience with OCF patients.

Remember this...surgeons cut, thats their job. Once something has been cut off then it cant be returned to its exact original functionality.

Do not allow geographic location determine the treatment plan.

On the main pages of OCf there is a list of cancer centers. This can help you to find a place for treatment. Another source for doctors is the insurance company. Most have websites that can give you a list of doctors and specialists.

Clinical trials are something a few members have been a part of.

As far as reading and becoming educated about OC, take some time to read the draft copy located under the last heading Getting Thru it Project. This is very valuable info coming directly from patients and their caregivers. It will also help in your list of questions to ask doctors.

You have already asked an important question. How many OC patients have you treated is a great start.

A dentist is necessary. Trays for floride need to be made and maybe even some teeth removed prior to starting treatments.

Most doctor appointments are first the consultation. Then a plan is devised, carried out and then check ups.

Your friend could end up with a large list of doctors. Sometimes its tricky figuring out which one to call for what. Just think as to what each doctor specializes in that will help when you dont know who to call. Ive had a medical oncologist, radiation oncologist, nutritionist, ENT, oral surgeon, dentist, prostiodontist (dentist who specializes is cancer/trauma patients), gastrio surgeon, speech therapist, physical therapist and hyperbaric oxygen wound specialist doc.

Starting out is a scary time and its filled with many appontments and consults. Make sure your friend doesnt go alone, take notes, ask questions. Dont let cancer steal time away from you both with worrying, it will not change one thing. Make the best of everyday and find joy in things that make your friend happy. Start encouraging your friend to eat like crazy and the heck with the calories. Its ok to gain weight, just make sure that they have no regrets when their sense of taste isnt working like it should.

Best of luck to you and your friend.